05/23/2026
If you’ve been here a while you know I’ve gone through the ringer medically since my baby stroke in 2023- while that whole ordeal was scary to say the least, it did at least bring to light some of the autoimmune conditions I have that we had no clue about previously.
I thought everyone was chronically tired, I thought everyone’s bones and joints hurt and were stiff in the morning, I thought fevers were normal and I just “ran hot,” I thought my hair was falling out because they removed my thyroid, i thought I was always sick because I didn’t eat the right food, I thought my brain fog was because I was a new mom finding my place in the world.
Turns out my body was fighting a disease I had no idea about. Then when we found out about my lupus diagnosis I was also diagnosed with the evil friend of the mixed connective tissue diseases Scleroderma.
I truly can’t sit here and tell you which one causes which because they work together to attack my good organs and healthy tissue. It’s been three years this month since being diagnosed and I still find myself in the constant battle over remembering to rest, remembering that medication takes time to work in your body (did you know it takes 6 months for some of the treatment to even make a difference but during those six months you’ll be extra sick LOL)
Lupus is a weird disease because on the outside we look fine but on the inside our bodies are fighting us at every chance it can.
I never acknowledge my conditions because I rather operate under the illusion I’m fine all the time and embrace the suck. But I also know I’m full of delusion.
So for everyone fighting a battle no one knows about, I understand.
🦋💜
