03/06/2025
This month I am doing the final step of my mindfulness facilitator training with the UK based organisation called Breathworks. It’s founded by Vidyamala Burch, who I find deeply inspiring in how best to approach my illness overall and symptoms specifically (Chronic Fatique Syndrome in my case).
One of her key points is to stop seeking miraculous healing of illness and instead work on healing ones attitude, for example through mindfulness.
This resonates with me. I have been stuck in seeking cures for 5+ years, resulting in thought patterns like “I have tried everything and nothing works”, rather than looking at how lots of the things I did actually improved my symptoms a little bit, while not providing a cure. But because my expectation was unrealistic, I didn’t appreciate the little improvements. And I think realistically, most big improvements, if they theoretically were to occur, would be comprised of many small improvements happening consistently over time. Unrealistic expectations were in the way of this consistency, cause they led to emotional tantrums of “it’s all useless anyway” and then falling into holes of depression, or just continue over-doing to distract myself from being with things as they are, thereby making symptoms worse. I still see aspects of these patterns, but I also really got far when it comes to consistency.
This is why I never wanna be part of the healing industry that over-promise on miraculous results. Cause this type of marketing fuels the above described mechanisms, that in my experience are often counter-productive.
However, it’s a fine balance to walk on the edge of realistic hope. Cause on the other side, you don’t wanna loose hope to an extend that keeps you from doing all the things that have positive effects on your health.
To those of you out there who live with chronic illness - how do you walk this balance between hope and realism?