01/22/2026
"Nobody ever imagines getting sick and never recovering. You can't even begin to imagine never-ending torturous abyss until you're living it - "You don't get it until you get it" couldn't be more true. The suffering Lyme victims go through is barbaric and not just the disease itself but the atrocious crimes that surround it. People are afraid to speak the truth because of the rejection they already face in this world living with such a controversial and politicized disease. It's a worldwide pandemic, people need to know the truth. Everyone says don't let your illness dictate your life, chronic Lyme controls every aspect of your life, every waking second and there's no way around it.
Victims are told by the establishment and every doctor they see it's all in their heads. It is, literally. They're living with a permanent brain infection, encephalopathy, hydrocephalus, demyelination or lesions. Your brain becomes hijacked. Your mind becomes it's own entity that you don't even recognize anymore. Progressive cognitive dysfunction and memory loss as if every brain cell is being destroyed one by one. Thoughts disconnected from your speech. Auditory and visual hallucinations as if you've been drugged. It will drag you through the deepest darkest levels of hell you've never imagined existed. Rage out of nowhere like the Incredible Hulk and crippling anxiety. You cry yourself to sleep, you cry alone staring hopelessly at your 4 walls day in and day out. Begging to be saved or begging just to be put out of the misery. Help me please. Make it stop. Sorrow, defeat, hopelessness, powerlessness. Are you dying or fighting to survive?
It's as if your body has an internal circuit breaker malfunctioning each circuit one by one. Pain ripping through and ravaging through every organ system. Crushing every bone, mutilating every joint, suffocating every muscle until strangulation, head pressure as if your brain is imploding, sand paper scraping your brain, razor blades ripping through your intestines and stomach, trying to breathe as if something is squeezing your lungs, blood turned to acid burning you from the inside out like a pressure cooker, railroad spikes into your skeletal system, lesions as if you were burned, pain that throws you to the ground.
Central nervous system as if it were hooked up to a high voltage power line like being tortured to death with a slow steady constant electrocution running through every vein, penetrating the brain to insanity. Electrifying, zapping, burning, tingling, stabbing, vibrating like an internal short circuited exposed live wire backfiring, your core is an electrical circuit while your outer surface feels dead. As you helplessly you feel seizures coming on or restless leg syndrome spreading throughout your entire body, sudden jerks and spasms. Stiffness or spasticity as if you just woke up from a coma. Passing out or falling as if you've become allergic to sitting upright or standing. Balance and coordination circuit has malfunctioned.
Body or limbs disconnected from the brain to paralysis or complete immobility. You're trying to move through cement or turned to stone, can't lift your head, your limbs bearing weights, no energy to blink or breathe, as if every cell and organ system is shutting down. A permanent vacuum installed to your cells slowly sucking every ounce of life. Your hanging on by a threads and every day another thread breaks. Everyday a new weight is added to your bucket. Everything is resistance pulling you the other way. Blood pressure, sugar and heart rate circuit shortage.
Everything makes you sick. Sound, heat, humidity, lights, chemicals, physical and mental exertion, foods. Intense sweating, dehydration, tremors, twitching, vomiting, chills, fever as if you were going into septic shock. Insomnia to hypersomnia are now permanent. You feel drugged, hungover, toxic, poisoned. A 365 day flu, every year. You cant eat, sleep, talk, think, shower, move or walk without climbing Mount Everest. Some recover, while millions remain bedridden or wheelchair bound with nowhere to turn.
But wait....there's no help anywhere? You hit a state of panic. What do you do? Where do you go? How are you supposed to live like this? In a human torture chamber.....
"Lyme disease is absolute torture physically, mentally & emotionally where you scream & scream for help but nobody hears. It is a hell on earth. We live on a different earth, one where no one cares, no one hears, no one helps. It's like being a toddler in an adult body, you can't take care of yourself with a broken brain & broken body but there are only doors slammed in your face at every turn. It's like being undead. You're too sick to ever participate in life. All things that make life worth living have been stolen from you, leaving you a ghost of your former self, forever doomed to haunt the world, but you can never participate in it. And if you dare try, you are given a payback of such severe pain and a flare up of symptoms that make it never, ever worth trying. Everything you used to enjoy makes you severely physically ill. Everyday is a never ending struggle just to survive the most basic of needs. And sometimes, you can't even do that. You are stuck in a world you are not well enough to live in. And no one will help you. There is no help coming. There is no future. There is only now, and never ending pain, and disappointment, and a loneliness only the undead can feel."
Photo bottom part of photo from:https://lymedisease.org.au/lyme-disease/lyme-co-infections/
Quote of: Trishy Munoz
