09/19/2026
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Our beautiful boy Avery passed away suddenly today at 7:00 PM.
We don’t know how to write these words. We don’t know how this became our reality today.
Although Avery had recently transitioned to hospice care, we truly believed we still had months with our little man. Today, we brought him to the hospital for what we thought would be a routine visit.
We never imagined we would leave without him.
Everything changed so quickly.
When we realized our time with Avery was coming to an end, we brought him to one of his favorite places at the hospital, the rooftop garden.
We held our beautiful boy in our arms as a family. We kissed him. We told him how much we loved him. We told him how proud we were of him. And we stayed wrapped around him as he took his last breath.
For nearly eight years, we fought beside Avery with everything we had. Tonight, for the first time, we have to figure out how to exist in a world where we can’t bring him home with us.
There are no words for that kind of pain.
Thank you for loving our little boy. Thank you for praying for him, cheering for him, watching his videos, and giving him a community that brought him so much happiness.
As we begin to grieve and somehow learn how to live without Avery, we ask that you please give our family some privacy, time, and space to simply be together.
Being Avery’s parents has been the greatest privilege of our lives.
We would give anything for one more day.
We love you forever, Avery.
Our handsome boy. ❤️
