Wish Come True Co.

10/21/2024

Want to help us put the TREAT in Trunk-or-Treat?

As a 501c3 nonprofit, we at Wish Come True Co. rely on donations in order to keep bringing joy to kids with disabilities and rare diseases.

This Halloween we are thrilled to be joining in on a wonderful, inclusive Trunk-or-Treat put on October 26th! Our trunk is Under the Sea themed this year, with both Ariel and Dory in attendance. We can’t wait to bring joy & magical fun to the kids at the event, who have disabilities, sensory differences and developmental delays.

If you would like to help us fund our event, there are options both for cash donations (Venmo) and an Amazon wishlist! Links below!

Venmo: https://account.venmo.com/u/wishcometrueco

Amazon Wish List: https://www.amazon.com/hz/wishlist/ls/2DEU8KF4I5COB?ref_=wl_share

If you would like a receipt for your donation, please send me an email at [email protected] and I will get you a tax-deductible receipt! 💞

09/13/2024

One of the most exciting videos we have filmed so far!! Thank you Norah’s CREWsaders for giving us the opportunity to make such a special video announcing Norah’s Disney wish being granted! And thank you Skylar Horne for being the most wonderful Elsa who knows the struggle of our kids so well. 💙💙

05/29/2024

Catch me and Dally and our beloved Dr. Le Pichon on KMBC 9 news tonight at 6!

04/15/2024

UPDATE ON JULIA (3) in GAZA!!

Things are moving with politicians, refugee resettlement, and some big names in the AHC community are working to get Julia out of Gaza and to Germany to a renowned AHC doctor who is preparing for her care. Huge thank you to Simon Frost!!

💙 HOW CAN YOU HELP JULIA? 💙

1. SHARE this post! Help us get this seen by as many as possible.

2. Reach out to anyone you know who can help with refugee evacuation!!

3. Give to Julia’s family’s go fund me. The funds are to evacuate Gaza expedite that evacuation and travel to Egypt — then to Germany to get to the AHC specialist.

4. Pray to whomever you pray to for favor and for us to somehow get into contact with the right people to get Julianout of Gaza and then OUT of a 6 month AHC episode of paralysis.

https://www.gofundme.com/f/my-daughter-who-has-a-rare-disease-is-a-human-t

Regardless of what you think about the war please consider this precious child. She has the same condition as my child and has been paralyzed nonstop for 6 months! She can’t walk, talk, sit, play, or eat. They are keeping her alive with a bottle.

Be a part of something bigger than you!

04/14/2024

Julia is just 3 years old and lives in Gaza with her family. She has AHC just like Dallas (atp1a3 gene) and has been unable to move, stuck in an episode for 6 months due to lack of adequate medical care, supplies, and no ability to leave the country. She used to sit and eat and play and now is completely paralyzed due to AHC. They have lost countless family members to the war and Julia is suffering from the same rare disease as our Dallas DURING THE WAR.

My heart breaks for Amjad Zuaiter and Julia. If you are able and want to actively help a family in Gaza, please donate. The money goes to helping them apply to Egypt for expedited entry to Egypt since there are more than 100,000 sick and wounded waiting to evacuate. Then to getting the family to Germany for medical treatment. Not to mention the medical costs.

Imagine if your child was suddenly paralyzed for 6 months… in the midst of a war…

My daughter, who has a rare disease, is a “human time bomb” My daughter has been diagnosed … Amjad Zaiter needs your support for Help Julia get her treatment

03/01/2024

🧬 It’s Rare Disease Day, a day where we remind the world of the many people living with rare diseases. My favorite person with a rare disease is my Dallas Willow. She’s so incredibly special in so many ways, least of which is her rare disease Alternating Hemiplegia of Childhood. She has good weeks and bad weeks and this one has been a tough one for her with off and on episodes of AHC all week, making it difficult to forget what she goes through.

AHC is said to be one-in-a-million and is caused by a change in the ATP1A3 gene for most, including Dallas. It causes a variety of neurological issues including epilepsy & dystonia, developmental delays, GI issues, autism-like traits, loss of skills, mobility issues, cardiac issues and more, but the hallmark of it is “episodes” of hemiplegia/paralysis, abnormal eye movements and dystonia that often last days or weeks, beginning before 18 months. There is no cure for AHC and no medications yet found that can stop these episodes from happening so the focus is on quality of life, intense therapy when well, and avoiding triggers to episodes as much as possible. We continue to hope to see a cure within Dallas’ lifetime…

As Dallas’ mom & primary caregiver, it can be really tough to watch her struggle in pain, going through so much and it can take a toll on my mental health. Creating Wish Come True Co. is my way to feel like I can make a positive difference in the lives of kids like Dallas, bringing joy where there is often pain, sickness & sadness.

Dallas is my #1 in life and my inspiration for so we celebrate her and her many friends who also have rare diseases.