MRKH Canada

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MRKH Canada MRKH Canada is a registered Canadian charity that aims to support, educate and empower those born with, or affected by MRKH Syndrome.

OUR MISSION
MRKH Canada's mission is to educate, empower and support those diagnosed with Mayer-Rokitansky-Kuster-Hauser Syndrome (MRKH) within Canada and beyond through advocacy, events and other organized initiatives. Our organization stands as an advocacy group, support network and resource for both the medical community and those diagnosed with, or supporting those with MRKH. We aim to increase the knowledge and decrease the shame and stigma attached to the condition, as well as to improve the quality of life and care for those living with the syndrome.

SUPPORT GROUP REMINDER 💜We have two upcoming virtual support spaces with MRKH Canada — and we’d love to see you there.🗓 ...
10/11/2026

SUPPORT GROUP REMINDER 💜
We have two upcoming virtual support spaces with MRKH Canada — and we’d love to see you there.

🗓 Parent Support Group (1 week away)
For parents of children diagnosed with Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome
Date: Sunday, October 18, 2026
Time: EST: 7:00 PM | NST: 8:30 PM AST: 8:00 PM CST: 6:00 PM MST: 5:00 PM | PST: 4:00 PM

🗓 MRKH Community Support Group (2 weeks away)
For individuals diagnosed with MRKH
Date: Sunday, October 25, 2026
Time: EST: 7:00 PM | NST: 8:30 PM AST: 8:00 PM CST: 6:00 PM MST: 5:00 PM | PST: 4:00 PM

Both groups are:
✨ Virtual
✨ Confidential
✨ Camera-optional
✨ Grounded in compassion

If you’re planning to attend either session, please make sure you register in advance so you receive the meeting link.

🔗 Register at: mrkhcanada.ca
Whether you’re a parent or living with MRKH yourself, you deserve connection and support. 💜

   

🍂 Happy Thanksgiving from MRKH Canada! This Thanksgiving, we’re thinking about family — whether that’s the family we’re ...
10/10/2026

🍂 Happy Thanksgiving from MRKH Canada!
This Thanksgiving, we’re thinking about family — whether that’s the family we’re born into, the family we choose, or the family we found. 🤎

At our MRKH Conference last month, we invited everyone to share what they were grateful for on our Gratitude Wall. And the responses beautifully captured what makes this community so special:
💜 Family and chosen family
💜 Sisters
💜 Community and inclusion
💜 Love, support and connection

For so many people with MRKH, this community has become a family of its own — a sisterhood built on shared experiences.

This Thanksgiving, let’s celebrate all the people we’re grateful for, starting with YOU!
Who or what are you feeling grateful for this Thanksgiving? Let us know below! 🍁

For the past couple years, at our annual MRKH Conference, we have played some MRKH Trivia to test our knowledge on MRKH ...
10/05/2026

For the past couple years, at our annual MRKH Conference, we have played some MRKH Trivia to test our knowledge on MRKH Syndrome. Now, we’re bringing that little trivia game to our social media! Here’s round one. 🙂
“People with MRKH typically have functioning ovaries. “

FACT or FICTION? 💜
FACT!
Most people with MRKH have functioning ovaries, which means the ovaries can typically produce hormones and release eggs, even though the uterus and upper portion of the va**na are absent or underdeveloped.

Did you know this one? 👀
Follow along for more MRKH facts and education!




💜 A Canadian first — and a milestone for the MRKH community!Sinai Health has shared the story of a baby conceived and bo...
09/29/2026

💜 A Canadian first — and a milestone for the MRKH community!
Sinai Health has shared the story of a baby conceived and born after a uterine transplant — carried by a woman with MRKH.

The transplant took place in the U.S., with the pregnancy achieved through IVF, and the baby was delivered in Toronto in October 2025. 

Uterine transplantation remains a highly specialized and limited option, but we’ve started to hear about Canadian physicians working on hopefully bringing this option to Canada in the future. 

Read the full story: https://www.sinaihealth.ca/news/a-canadian-first-baby-conceived-and-born-after-uterine-transplant

💜 Our next MRKH Canada Support Group is this weekend!Join us virtually for a chance to connect with others in the MRKH c...
09/24/2026

💜 Our next MRKH Canada Support Group is this weekend!
Join us virtually for a chance to connect with others in the MRKH community, share experiences, ask questions, and spend some time together in a supportive space.

✨ This month’s theme: MRKH Trauma & Triggers: How to Cope

Hosted by Karla (https://mrkhcounselling.ca/) 
📅 Sunday, September 27, 2026
🕐 7:00 PM EST / 6:00 PM CST / 4:00 PM PST
💻 Virtual — registration required

Register through mrkhcanada.ca to receive the meeting information.

This morning, Ashley did her annual lecture at Queen's University to raise awareness about MRKH to university students l...
09/24/2026

This morning, Ashley did her annual lecture at Queen's University to raise awareness about MRKH to university students looking into healthcare careers. This many more people now know what MRKH is! 😊

💜 A round of applause for our incredible 2026 MRKH Canada Conference speakers! 👏🏼Our conference simply wouldn’t be what ...
09/21/2026

💜 A round of applause for our incredible 2026 MRKH Canada Conference speakers! 👏🏼
Our conference simply wouldn’t be what it is without the people who generously volunteer their time, knowledge, expertise & personal stories. Big thanks to the following:
Jessica — Our last-minute MC superstar! When Lillian had to step away due to a family emergency 48 hours before the conference, Jess jumped in & took on the role. Her positivity & bubbly personality were such a wonderful addition to the day. (Jess first joined us last year as a supporter & Ashley’s step-sister — this year, she found herself at the mic!)

Dr. Caroline Pukall — A longtime friend & research collaborator of MRKH Canada. She shared updates on our ongoing research & led an incredibly practical workshop filled with tools & strategies for advocating for yourself in healthcare settings.

Karla — As both an MRKHer & a psychiatric nurse, Karla brings a unique perspective that combines lived experience with professional expertise. She led our Understanding Your MRKHer session for supporters & shared her own journey. Her compassion & humour always shine through!

Danika — As she prepares to welcome “Baby Stein” this November through surrogacy, Danika shared her journey toward motherhood. Her story offered both honesty & hope, while also opening the conversation around inducing lactation & her plans to breastfeed her baby.

F. — While she isn’t fully open about her MRKH yet, F. bravely shared her story for the first time. Her vulnerability & honesty resonated deeply with so many MRKHers in the room.

Dr. Prati Sharma — It was great to welcome Dr. Sharma back to our MRKH Conference! She guided us through fertility options including IVF, egg freezing, egg donation & uterine transplantation for those with MRKH exploring ways to build a family. Her expertise & compassionate approach make her such a valued member of our community.

We are so grateful for each of you! 💜
Please give a round of applause in the comments for our incredible speakers! 👏🏼

💗 Post-conference check-in: How’s everyone doing today?Yesterday was filled with connection, learning, laughter, vulnera...
09/14/2026

💗 Post-conference check-in: How’s everyone doing today?

Yesterday was filled with connection, learning, laughter, vulnerability, and a lot of feelings. And while we hope you left the conference feeling supported and empowered, we also know that a day like that can take a lot out of you emotionally.

So today, we’re checking in.

For me, recovery has looked a little something like this:
😴 Sleeping in
🚶‍♀️ Going for a walk
🐈 Taking my cat for a walk 😹
💆‍♀️ Getting a massage
🛁 Having a long bath
📺 Watching some TV
📝 And…already jotting down ideas for next year’s conference… because apparently I don’t know how to turn my brain off. 😂

Whatever your version of recovery looks like today, give yourself permission to do it. Rest. Get outside. Have a bath. Watch something mindless. Cry if you need to. Eat something delicious. Spend time with someone who makes you feel safe. Or simply do absolutely nothing.

You don’t have to process everything today. You don’t have to be productive. And you definitely don’t have to be “back to normal” just because the conference is over.

Take care of yourself today. You deserve it. 💗

And if you feel up to it, tell us: what does your post-conference self-care look like? 👇
- Ashley

Yesterday, we gathered. And it was powerful.Thank you to every attendee, speaker, volunteer, and supporter who made our ...
09/14/2026

Yesterday, we gathered. And it was powerful.
Thank you to every attendee, speaker, volunteer, and supporter who made our 2026 MRKH Conference so meaningful.
We witnessed courage.
We shared stories.
We learned together.
We strengthened our community.
To everyone who showed up — whether nervous, excited, or somewhere in between — thank you for trusting us and for trusting each other. MRKH Canada exists because of this community we’re building.

We are already looking forward to next year.
📅 Save the date: September 25, 2027!

P.S. More photos to come. 📸😏

SUPPORT GROUP REMINDER 💜We have two upcoming virtual support chats — and we’d love to see you there.🗓 Parent Support Gro...
09/13/2026

SUPPORT GROUP REMINDER 💜
We have two upcoming virtual support chats — and we’d love to see you there.
🗓 Parent Support Group (1 week away)
For parents of children diagnosed with Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome
Date: Sunday, September 20, 2026
Time: EST: 7:00 PM | NST: 8:30 PM AST: 8:00 PM CST: 6:00 PM MST: 5:00 PM | PST: 4:00 PM

🗓 MRKH Community Support Group (2 weeks away)
For individuals diagnosed with MRKH
Date: Sunday, September 27, 2026
Time: EST: 7:00 PM | NST: 8:30 PM AST: 8:00 PM CST: 6:00 PM MST: 5:00 PM | PST: 4:00 PM

Both groups are:
✨ Virtual
✨ Confidential
✨ Camera-optional
✨ Grounded in compassion

If you’re planning to attend either session, please make sure you register in advance so you receive the meeting link.
🔗 Register at: mrkhcanada.ca

Whether you’re a parent or living with MRKH yourself, you deserve connection and support. 💜

   

Address

Kingston, ON

Website

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